26 March = Purple Day

cassidy! [she's cute]

cassidy!(she's cute)

Founded in 2008, by nine-year-old Cassidy Megan of Nova Scotia, Canada, Purple Day is an international grassroots effort dedicated to increasing awareness about epilepsy worldwide. On March 26, people from around the globe are asked to wear purple and spread the word about epilepsy. read more

So people, i hope you’ll wear something purple for today [sorry for the late notice, I myself forgot it until i checked the date, i thought w were still on the 24!]. Anywayz, if you could get some pics of you wearing something purple, anything purple [earings, rings, bracelets, tshirt, underwear or lingerie! ] post the pics :p [or mail me them :p  to >> [without the space]

pc the great AT gmail DOT com

show the world that mauritius also knows about it!

already my msn logo has turned to: lmraepurp

A small summary on epilepsy from wikipedia

Epilepsy (from the Greek επιληψία /epili΄psia/ ) is a common chronic neurological disorder characterized by recurrent unprovoked seizures.[1][2] These seizures are transient signs and/or symptoms of abnormal, excessive or synchronous neuronal activity in the brain.[3] About 50 million people worldwide have epilepsy, with almost 90% of these people being in developing countries.[4] Epilepsy is more likely to occur in young children or people over the age of 65 years, but it can occur at any time[5]. Epilepsy is usually controlled, but not cured, with medication, although surgery may be considered in difficult cases. However, over 30% of people with epilepsy do not have seizure control even with the best available medications [6][7]. Not all epilepsy syndromes are lifelong – some forms are confined to particular stages of childhood. Epilepsy should not be understood as a single disorder, but rather as a group of syndromes with vastly divergent symptoms but all involving episodic abnormal electrical activity in the brain.

My views about it.

Its a horrible stuff to live with.

for me, an episode would be like [say for my exams]:

  • i am working.. then all of a sudden, i don’t remember wtf am doing here
  • concentrate on this paper selven! come on!
  • heh, everything is reversed, wtf???
  • try to see away and voice out your problem to some lecturer around.. shit unable to use the voice function
  • try to use the pen to write out your problem selven… shit, how do i write???
  • try to remember how to write selven, write the alphabets!!! shit i feel like am on the other side of a mirror, feels weird.
  • then the pen falls…. then you have vague recollections … [i remember in a distant very distant, the voice of avinash saying "selven?" [kind of slow motion]. (from my last seizure at univ sa)
  • Then all hell break loose [ i am suffering form a seizure here, so i have no idea what's goes on here (only recollection from what people said to me later)].
  • Some hours after, i am on a chair, someone i see the form of someone talking to me… probably whoever’s been there been trying that for a while. to wake me up… when i wake up the first thing i think is “Oh shit it happenned again, fuck!”
  • Then a few people taking me down the stairs… i can’t walk properly or use other motor function, including speech, as if i have forgotten how to do those.
  • then am in a car, being taken in the hospital, not much of any recollection of the travel, most people appear like white shadows all the way…
  • in the hospital, you are there waiting for the doc, pain all over the body started [all those muscles contractions.. specially inside my head it feels like someone placed his hand inside and crushed it].. still no doc.
  • then some doc came, and i am admitted.. if i am lucky i get some valium for the pain. the night goes on well if i do get some
  • mom and dad calling me up at night, worried about me. Sometimes friends also asking for my news, i remember maybe cindy, ramila, deoraj, taucoor, vicky and a few other friends sms’in. Don’t remember well though, remember mostly from messages i checked later.. i did reply then, but i don’t remember the event.
  • sometimes people come by for a visit. for those 3 days of stay.
  • After 3 days i am free to go home. Thing is… those 3 days are mostly a mystery to me… most of the time is like a big void, its from the day of the seizure and the next 3 days my memories are lost and i try to regain it back by asking people around about what happenned exactly. The shit about it is that i hate to know that i have no idea what really happenned in those three days, but that it is something people told me happenned, and just some vague recollection of what i still retain.
  • UPDATE : food has no taste during those 3 days…
  • Good thing is  that its as if my brain just got drained of everything, i am free from stress  or thoughts for awhile. I just live like… i am living …. some days later everything becomes normal!

Problems i had in the pas or still do:

  • people looking at you and tagging you as “fou” since its a disease they don’t understand.
  • people claiming that actually you are possessed!
  • i ger hurt when i fall! my muscle pains
  • have to learn to live with limits set on!

Things that seems to work out for me making me live with lesser seizures:

  • A good neurologue [dr. lam]
  • Following his medical dose.
  • All ways of de-stressing including some mary-jane once a while [helps A LOT] and :p masturbating or sex ..LOL :p
  • having friends around!

And no, epileptics will not swallow their tongue during a seizure! :p just make sure they don’t get hurt  while having the seizure!

greetz: cassidy, folks at destiny maker, Glenn A Fenster and all my friends who helped me when i was having a seizure :p [and my parents also] :p

—————————–UPDATE—————————

So now for some pics!

There’s a girl called rubina who is in my algo class  she really read my blog and supported the cause today! Thanks gal :D

Cool purple tshirt :D

Cool purple tshirt :D

huh desolE.. i kind of focused on the tshirt and forgot to frame the pic properly.

Then there was this friend of my grandma who wore a purple “downi” [enfin sans li konE ou sans linn lire my blog]

sa ki li bolfam!

sa ki li bolfam!

then there’s john :p  there was some purple design on his boxer!

li pena salle de bain lakaz

li pena salle de bain lakaz

hahahaha :p ti so lannif, linn gagne 1 bon coutt peintirE ar dizef!

et then ya moi :p who managed to get some purple lined shirt

discovery!

4got to smile?

Ahh yeah i forgot.. i discoverred that i had a purple pen!

the discoverry!

the discoverry!

pics are welcome :p

merci osi a Navin ki ti p promote sa lor msn!

a Kurt Avish ki ti p promote sa lor so blog island crisis

a Roushdat kinn design 1 new msn logo en purple pou li!

a cindy kinn wear so purple earings :p

et a zot tou kinn conscient de la gravitE de sa malade la [et welcome nitish and chaya for their first post on this blog]!

——————————————————————-

Hope you get the message!
+$3|v3n

Popularity: 16% [?]

15 Responses to “26 March = Purple Day”

  1. Yashvin Says:

    Nice article, you could not write this topic even better!

    Purple…. I dont think I have a purple shirt :S
    Anyway, will wear one which has a few purple stripes then, “c l’intention ki compte”

    One thing for sure, its great that you do not have this seizures anymore :)

    Cheers!

  2. selven Says:

    lol, never said i don’t have these seizures anymore :p i just said… its been lying dormant since a year… seems promising

  3. Cindy Says:

    I got purple earrings :)
    Thanks for making us aware of this.

  4. yud Says:

    hehe…i like dis day… i will wear my J.K.C jacket in my locality…its really dark purple…da same one 4 megashow defiler..one guy put 4 private tuition…

  5. selven Says:

    lol @ yud: tou jkc inn support alor!!!
    @Cindy :p hehe thanks .. remind me that i would love to see ya wearin purple earings

  6. Nitish Says:

    Just read your blog!! Hopefully things get better for u!! Gonna need a purple tshirt soon!! :)

  7. Roushdat Says:

    Nice :D Mo pas ti pou mem coner si exister sa zour la si to pas ti coz sa. Well on my side, since mo pane sorti mem, mone design a new msn display with purple background, i twitted about purple day as well :p
    Well i just hope more people become aware of epilepsy and what it is really. I myself didn’t know much until a few years back.

  8. Chaya Says:

    I welcome myself to your blog for a first time :)
    Honestly, I did not know and understand much about epilepsy. And I am glad that you shared your knowledge about it. However, the way you described your seizure was kind of touching, and it really made me realise that epilepsy is not just another “disease” (if I can allow myself to say so).
    Unfortunately, it’s now that I am reading this. So, I’ll show my support tomorrow. And I’ll find something purple to be with me :)
    Hope everything’s fine on your side.
    Talk to you soon :)
    Cheers
    Chaya

  9. Kurt Avish Says:

    A bit too late to wear something purple now… but have made a purple strip on my blog…at the header. :-)

  10. Avishen Says:

    I read abt this quite late…else i would have definitely wore purple today! :S anyway, i’ll always remember it koz its on the next day of ma birFD! anyway, hope u never got to go any though these…seems so scary and “tormenting”.. :S

  11. Navin Says:

    Everything i’ve ever read about epilepsy comes from your blog man!! Such that i now even know how to react if someone is suffering from a seizure. Le matin kan mne chek to blog ki mne al decouvert the purple day, mo display pic lor msn mem ti logo purple day..lol :D

    Esperer to ban la journee nepli pass kment dan sa l’example tne cite la frero..

    Cheers dude, et support la tout le temps la mem li :)

  12. selven Says:

    @Nitish welcome to my blog also :p. hehe yeah tshirt for next year :D Don’t forget :D

    @Roushdat: lol… et tonn konn so bann medcine tou grace a moi lor msn! hahahahaha

    @chaya: hehhh… now that’s a surprise.. welcome aboard!!!
    “if I can allow myself to say so” mais bien sure ta :D , i host the blog, alor, i don’t mind people saying anything on this blog :p. infact you can even post porn or say swear words here..lol freedom section sa! [enfin i'll comment if i don't like the stuff :p] LOL.

    as for the purple stuff :p next year asterr :D
    thanks.

    @Kurt: hehe seen that :D ! plus you’ve put a redirection to the purpleday website!!!!! that’s coool!

    @Avishen: Weps sorry, actually i posted it late! Happy belated Birthday dude!!!!! :p Hmm to pann mett to birthday lor facebook???? i could have got some news about it !!!

    As for the seizure… yes …. its fucking scary and… zombie like.

    Ahh i forgot to put another stuff… food has no taste for the 3 days….

  13. selven Says:

    @navin: indeed hope so:D
    thanks for your comment

  14. Anikka Says:

    Jeez, i missed it!! But i’ll remember it next time, promise!

    Oh, btw: hullo! My first time here, and i felt i just had to post coz i helped a little girl having an epileptic fit once. I was with a couple of friends in a restaurant and the girl was seated right next to our table with her elder sister. The latter suddenly jumped from her seat and wrapped her arms around the little one. We thought she was hitting her! Then the little girl slid right down to the floor and started jerking. I sprang up to help (one of the few who did), coz i had read an article about those fits once, and we got some cushions to put under her while she was jerking, coz as you mentioned, its painful when you fall!

    The stupid people in the restaurant were crowding around (at a safe distance coz they probably thought diable pou rent r zot si zot vin près) and the poor dear couldn’t breathe. i got angry and shooed them away. After a while the girl came round and could sit up, and the medics came to take her.

    Just to say that i’ve seen how hard a fit can be for the person and their family (the look on the poor sister’s face was heartwrenching), and my prayers and best wishes are with them…

    Cheers Selven!

  15. selven Says:

    hehh anikka Welcome :D :D:D

    I sprang up to help (one of the few who did), coz i had read an article about those fits once, and we got some cushions to put under her while she was jerking

    Now that’s a courageous girl!

    The stupid people in the restaurant were crowding around (at a safe distance coz they probably thought diable pou rent r zot si zot vin près)

    Yup, that’s really sad.. and kind of make one wants to remain in the shadows… but hell like am a weird kid who has almost no taboos :p i just don’t care [to hell with people].

    i got angry and shooed them away.

    hahaha, sa meme ti bizin fer! Well done!

    The world needs more people like you, coz actually, an epileptics almost never knows when s/he might have a seizure, and most of the time it is thanks to people like you that we manage to make through it.

    Thanks for your post. Hope to see ya around.

    +$3|v3n

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